「私がいなくなったらどうなるの？」：知的障害のある成人の自立生活を支える技術に対する親の視点
"What's going to happen after I'm gone?": Parent Perspectives on Technology in Supporting Independent Living for Adults with Intellectual Disabilities
知的・発達障害のある成人の自立移行期における親16名へのインタビューを通じ、介護の実態と技術への認識を調査し、成長志向の支援技術の設計原則を導出した研究。
詳しい要約
1. どんなもの？
2. 先行研究と比べてどこがすごい？
3. 技術・手法の肝は？
4. どうやって有効だと検証した？
5. 議論はある？
6. 次に読むべき論文は？
※ AIが要旨から生成した要約です。正確性は原文をご確認ください。
著者: Alexander Tyshka, Andrea Macklem-Zabel, Absalat Getachew, Foong Ling Chen, Wing-Yue Geoffrey Louie
分類: cs.RO
原文アブストラクト
Adults with intellectual and developmental disabilities (IDD) are increasingly transitioning from family homes towards semi-inde\-pendent living. As parents hand off the role of primary caregiver, they face numerous challenges in arranging consistent and quality support. Our research centers on understanding these caregiving routines. By focusing on the unique lived experience of parents, who possess extensive explicit and tacit knowledge of their adult child's requirements, we aim to map the management of care they provide. This foundational understanding is essential to identifying how assistive technologies can effectively serve a key role in supporting adults with IDD in this transition. In this work, we interviewed 16 parents of adults with IDD beginning this transition to understand: 1) how they currently provide support for daily living and what makes their support effective; 2) what their experiences and perceptions are regarding the use of technology; and 3) how they envision assistive technology successfully integrating with their adult child's new home or with other supports to promote independence. Our thematic analysis produced four themes: common modes of support, inside the routine to support growth, the fragility of continuity of care across transitions, and participants' perceptions and experiences of assistive technology. Building on these findings, we derive four design principles for growth-oriented assistive technology. These include pre-transition onboarding to capture caregiver tacit knowledge; structured scaffolding towards long-term growth; adaptive sensing that responds to day-to-day variability; and customization for the individual balanced with consistency for the care network.